Our Story: Harper’s Legacy and Our Mission
Harpersfairyinc.org was born from the love and courage of our daughter Harper, who arrived into this world far too soon. Our family’s journey through premature birth and NEC (Necrotizing Enterocolitis) was filled with hope, heartbreak, and an unbreakable bond. We share Harper’s story not only to honor her memory, but to create a space where other families can find support, education, and community.
Every moment with Harper was a gift. Through our experience, we learned firsthand the challenges and fears that come with a NICU journey. We also discovered the power of compassion, connection, and advocacy. Our mission is to ensure no parent walks this path alone—offering accessible education, heartfelt support, and a nurturing community for families facing premature birth and NEC.
Our Story
Supporting Families Facing NEC
Harpersfairyinc.org was founded to provide hope, education, and support for families affected by Necrotizing Enterocolitis (NEC) and premature birth. Our journey began with a single family’s experience and grew into a national community dedicated to helping parents navigate the challenges of the NICU, find resources, and connect with others who understand their path.
Our Mission & Values
We are committed to empowering families, raising awareness about NEC, and fostering a compassionate, informed community. Our core values guide every step we take.
Empathy
We lead with compassion, supporting every family’s unique journey.
Education
We provide accessible, accurate information about NEC and premature birth.
Community
We nurture a safe space for parents to connect, share, and heal.
Advocacy
We raise awareness and encourage action for better neonatal outcomes.
Support
We offer resources and a listening ear for families in need.
Hope
We inspire hope for brighter futures, together.
Meet Our Team
Our passionate team is made up of parents, healthcare advocates, and volunteers who have walked the NICU journey and are dedicated to supporting others.
Jessica Harper
Founder & Parent Advocate
Dr. Samuel Lee
Medical Advisor
Ava Martinez
Community Coordinator
Emily Carter
Resource Specialist
What Parents Are Saying
Real voices from our community share how Harpersfairyinc.org has made a difference in their NICU journey.
★★★★★
Finding Harpersfairyinc.org gave us hope and practical advice during our NICU stay.
Megan T.
NICU Mom
★★★★★
The resources and support helped our family feel less alone.
James R.
Father & Advocate
★★★★★
Connecting with other parents made all the difference for us.
Priya S.
Premature Infant Parent
Join Our Caring Community
Whether you’re a parent seeking support or a donor wanting to make a difference, Harpersfairyinc.org welcomes you. Together, we can create hope for families facing NEC.
Why We Exist
Supporting Families Through Premature Birth and NEC
Our purpose is rooted in empathy and action. We are here to provide guidance, resources, and emotional support for families navigating the uncertainties of premature birth and the complexities of NEC. We believe in the strength of community and the healing that comes from sharing our stories and lifting each other up.
A Journey of Love, Loss, and Hope
Day 1
Harper’s Arrival
Harper was born prematurely, bringing both joy and immediate challenges. Our NICU journey began.
NICU Days
Fighting Together
We cherished every moment, learned medical terms, and leaned on each other and our care team.
Diagnosis
Facing NEC
Harper was diagnosed with NEC, a devastating condition. We became fierce advocates for her care.
After
Saying Goodbye
We lost Harper, but her spirit and story became the heart of our mission.
Today
Helping Others
Through Harpersfairyinc.org, we support families, raise awareness, and work to ensure no one faces NEC alone.
You Are Not Alone
Whether you are a parent, family member, or supporter, we invite you to connect, share, and find strength with us. Together, we can honor Harper’s legacy and make a difference for families facing premature birth and NEC.